Albinism is a rare genetic condition that is inherited and can be found in individuals across all races and ethnicities worldwide. This condition leads to a reduced production of melanin, the pigment responsible for coloration in the skin, hair, and eyes, resulting in lighter or absent pigmentation. Unfortunately, individuals with albinism often face discrimination and stigma, particularly in less developed regions.
Approximately 16 years ago, a girl with albinism was born in China. Upon seeing her exceptionally pale skin, her parents made the decision not to take her home. Tragically, she was placed in an orphanage just days after her birth. The staff at the orphanage, who named her Xueli, meaning “snow white and beautiful,” felt a deep sense of compassion for her. However, they were unaware that she would eventually be adopted by a caring family from the Netherlands, who would offer her a wonderful life.
At the age of 11, Xueli caught the attention of a renowned photographer from Hong Kong, who invited her to participate in a campaign celebrating diverse beauty. “She named the campaign ‘perfect imperfections’ and asked if I would like to join her fashion show in Hong Kong,” Xueli Abbing recounted in a BBC interview. “It was an incredible experience.”
In certain regions, there exists a belief that the bones of individuals with albinism possess medicinal properties, leading to horrific acts where some are mutilated, and their limbs are amputated. Aware of this reality, Xueli expresses gratitude that her only misfortune was being abandoned.
